How to Find Caregiver Respite Hours So You Can Rest
Plain-English guide to finding paid and free respite care hours for a family caregiver, with national programs, state services, and what to ask before you book.
At a Glance
In this guide (7 steps):
- 1.Call Your Area Agency on Aging First
- 2.Check Veterans Benefits if Your Loved One Served
- 3.Look at Adult Day Care Programs
- 4.Build a Volunteer or Family Respite Schedule
- 5.Try a Short-Term Stay at an Assisted Living or Memory Care Center
- 6.Use the Respite to Actually Rest
- 7.Plan Respite as a Regular Routine, Not an Emergency
Call Your Area Agency on Aging First
~54sQuick Tip
Ask whether your loved one is eligible for the state Medicaid waiver program. Many states pay for respite hours under these waivers, even for families who do not qualify for full Medicaid.
Check Veterans Benefits if Your Loved One Served
~47sQuick Tip
Call the VA Caregiver Support Line at 1-855-260-3274 during weekday business hours. The advisors are trained to walk a caller through every program in one call.
Look at Adult Day Care Programs
~52sWarning
Some adult day programs do not accept people with significant dementia or wandering behaviors. Ask about the program's level of care before you visit.
Build a Volunteer or Family Respite Schedule
~51sQuick Tip
Write a one-page description of your loved one before you bring in a new volunteer or aide. Include their name, what they like to eat, what calms them, what topics to avoid, and any medical concerns.
Try a Short-Term Stay at an Assisted Living or Memory Care Center
~54sQuick Tip
Some centers offer a free or discounted first respite stay as a way to introduce families to the facility. Ask about new resident promotions.
Use the Respite to Actually Rest
~53sWarning
Do not give the respite aide or center your personal cell phone for non-emergencies. Set up a single emergency contact, and let the aide know that real emergencies should go through that person.
Plan Respite as a Regular Routine, Not an Emergency
~2 minQuick Tip
Set a recurring reminder on your phone to call the Area Agency on Aging once a year. Programs and funding levels change. And you may qualify for new services after a change in your loved one's health or your own income.
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Respite care is short-term relief for a family caregiver. It can be four hours on a Saturday afternoon, a weekend at a memory-care center while you take a trip, or even a full week so you can recover from surgery. The point is the same: someone trained takes over the daily care of your loved one so you can sleep, see a friend, go to your own doctor, or do the laundry. Caregivers who use respite hours regularly have lower rates of depression, fewer hospital visits, and longer years of being able to keep their loved one at home. Caregivers who do not use respite hours are far more likely to end up exhausted, sick, or forced to place a parent or spouse into long-term care sooner than the family wanted.
If you have not used respite care before, the system can feel confusing. There are many kinds of respite, several ways to pay for it, and a different set of providers in every county. The good news is that respite care is more available, and more affordable, than most caregivers think. Federal and state programs cover thousands of hours each year for caregivers who qualify, and many faith communities, volunteer organizations, and nonprofit agencies offer free or low-cost respite for caregivers who reach out.
The types of respite care are simple once you sort them out. In-home respite is when an aide comes to your house for a set number of hours. Adult day care is a daytime center where your loved one spends part or all of a day with activities, meals, and supervision. Short-term residential respite is an overnight stay at an assisted living, memory care, or nursing facility, usually from one night to two weeks. Each type has different costs, different qualifications, and different signs that it is right for your situation. A good caregiving plan often uses two or three types at different times.
The single biggest reason caregivers do not use respite is guilt. Many feel that taking a break means they are abandoning their loved one or that no one else can provide care the right way. Both feelings are common and both are wrong. A loved one with dementia is often calmer with a trained respite worker than with an exhausted family caregiver. A trip away gives you the energy to come back as the patient, kind person you want to be. The math is on your side: respite hours are an investment in your ability to keep caring for many more months and years. This guide shows you how to find them, pay for them, and start using them this month.
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