Aphasia After Stroke: How to Communicate When Words Are Gone
Aphasia takes away language, not intelligence. Here is what spouses, children, and grandkids need to know to stay connected.
At a Glance
Slow down and shorten your sentences
~35sQuick Tip
Quick Tip: Sit at eye level, in good light, and minimize background noise. TV and radio in the same room make aphasia much harder.
Use yes-or-no questions and visual choices
~24sRecognize that intelligence and memory are intact
~33sWarning
Never assume aphasia means the person cannot make decisions. Use yes-or-no, pictures, and written choices to involve them in medical and financial decisions. A capacity evaluation should be done by a qualified professional, not by family alone.
Get into an aphasia group within the first 90 days
~22sYou Did It!
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Aphasia is one of the most heartbreaking and misunderstood effects of stroke. The person you love is still inside, with the same memories, opinions, and humor, but the part of the brain that finds and arranges words has been injured. About one in three stroke survivors has some form of aphasia, and the National Aphasia Association estimates more than two million Americans live with it. The most painful misconception is that aphasia is a thinking problem. It is not. It is a language problem.
There are several types. Broca aphasia (non-fluent) makes speaking effortful and slow, but understanding is mostly preserved. Wernicke aphasia (fluent) makes speech come out smoothly but with mixed-up or made-up words, and understanding others is harder. Global aphasia affects both sides heavily. Many survivors have a mix that does not fit neatly into one box. A speech-language pathologist (SLP) does the formal evaluation and creates a therapy plan.
The most important shift for family members happens in the first month. Stop trying to test or correct the survivor (Say it again, no that is not the word, try harder). Start communicating around the disability. Use short sentences. Ask yes-or-no questions. Give the person time. Use gestures, pointing, drawing, and writing. Pull out a photo, a calendar, a map. The American Stroke Association calls this supported communication. And it is taught at most rehab centers.
Hope matters here. Many survivors regain a great deal of language in the first year, especially with consistent SLP therapy, intensive aphasia programs, and aphasia groups. The Aphasia Recovery Connection runs free virtual groups. Lingraphica makes communication apps designed for aphasia. Speech generating devices may be covered by Medicare with a doctor and SLP prescription.
This is general information, not a substitute for an evaluation by an SLP certified by the American Speech-Language-Hearing Association (ASHA). For support and referrals, the National Aphasia Association at aphasia.org and the American Stroke Association at 1-888-4-STROKE can help.
(Sources: National Aphasia Association — Aphasia Definitions; American Speech-Language-Hearing Association — Aphasia; American Stroke Association — Aphasia)
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